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National organisations

There are many organisations that provide support for families with Special Educational Needs and Disabilities. We can’t list them all here but you will be able to find many local support organisations in your Local Offer. This guide lists some of the larger national organisations that provide SEND support in various ways.

Organisations

The Naval Children's Charity

Supporting the children of naval families since 1825. Kids has partnered with The Naval Children’s Charity to offer free support to naval families with disabled children through our Family Support Online service.

IPSEA

The Independent Provider of Special Education Advice (IPSEA) offers free and independent legally based education advice to parents of children with SEND. They also provide training on the SEND legal framework to parents and carers.

Council for Disabled Children

The umbrella body for the disabled children’s sector bringing together professionals, practitioners and policy-makers. Their website offers a range of information and signposting.

Children and Young People IASS Network

Information, advice and support services for young people aged 25 old or younger and need extra help with learning and have a disability. There are lots of different ways to talk to a friendly advisor.

Contact

Online, printed and helpline advice on education, benefits and finances, childcare, social care, medical topics, and more. They also run information sessions, hospital drop-ins, and parenting courses.

Right to Participate

This project, from Disability Rights UK, aims to increase awareness of the Equality Act, especially the ways it can protect disabled people from discrimination in everyday situations.

The Girl With the Curly Hair

Supporting people on the autistic spectrum and the people around them. They use things like animated films, comic strips and diagrams to make their work engaging and easy to understand.

Cerebra

National charity helping children with brain conditions and their families discover a better life together.

AccessAble

Providing detailed information to help disabled people work out if a place is going to be accessible to them.

Family Fund

Family Fund is the UK’s largest charity providing grants for families raising disabled or seriously ill children and young people.

Mencap

A long-standing national charity improving the lives of people with a learning disability and their families.

National Autistic Society

A wide range of information, support, and local branches to help transform lives, change attitudes and create a society that works for autistic people.

Down’s Syndrome Association

A national charity supporting and campaigning for the rights of people with Down’s syndrome. Including specialist advisers providing information and support on any issues affecting people with Down’s syndrome.

National Deaf Children’s Society

The leading charity for deaf children and their families. Information, training, advice sessions, and a helpline.

Sense

The charity supporting everyone who is deafblind or has complex disabilities. Education, short breaks, day centres, buddying, play sessions, and lots more.

Remap

Remap makes or adapts equipment for disabled people at no cost to them to help them live more independent lives.

Sky Badger

Sky Badger is a charity that finds help and adventure for disabled children and their families all over the UK.