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MP SEND Toolkit Launch

A group of young people with SEND attended the DCP MP SEND Toolkit launch, where they had the opportunity to share their experiences and concerns about the SEND system directly with MPs.

It was an inspiring day, and we’re so proud of the young people leading the way in shaping a brighter, more inclusive future for all.

On 21st November, we attended the Disabled Children’s Partnership SEND Toolkit launch for MPs, where young people with special educational needs and disabilities (SEND) had the opportunity to speak directly with Members of Parliament.

This event was about more than just information sharing; it was a vital step in ensuring that MPs truly understand the experiences and needs of young people with SEND and their families. It was about young people themselves using their voices and experiences to help create the meaningful change that we all know is so desperately needed in the SEND system.

Young people with SEND share their experiences

Young advocates Carly, Charlotte, Tobias, Joseph, and Marium attended the event where they had the opportunity to meet with MPs, share their experiences, and discuss how to improve the SEND system for everyone.

Tobias is part of the Collective, a nationwide group that unites young people with SEND, giving them a platform to voice their opinions and influence issues that impact their lives.

Within the Collective, Charlotte and Joseph are involved in the Young People’s Participation Team (YPPT) in the South, while Carly, a beneficiary, volunteers with the YPPT. This local group provides young people with the opportunity to engage with key decision-makers, including government departments.

Marium is part of the RISE Voice Group in Birmingham that amplifies young people’s voices and supports their participation in discussions on local and national policies that impact their lives.

Carly’s story

Carly is a young woman who has cerebral palsy, visual impairment and learning difficulties. Having experienced the challenges of the ‘cliff edge’ – where young people face a huge gap in support when they move from children’s to adults’ services – she used the skills gained from her time with the Kids participation team to take action.

Carly founded a social group for over-25s, ensuring support and connection doesn’t stop when you get older. Now, she volunteers with Kids, helping other young people get involved and amplify their voices.

Charlotte’s story

Charlotte, 24, has a rare genetic disorder that causes seizures, hearing loss and a learning disability. She leads a busy life, working on a farm and volunteering at a local hospital, as well as being part of the young people’s participation team.

Charlotte is deputy chair of her local participation group and plays a vital role in ensuring everyone has the chance to be heard in a safe and supportive environment.

Tobias’ story

Tobias, 19, has experienced mental health difficulties and is autistic. He is the co-founder of a participation group called IMPACT and continues to work with the Collective to help make improvements to the SEND system. All while studying at university to become a doctor!

Joseph’s story

Joseph, 25, is autistic and has a pragmatic language disorder. He has been developing his skills in public speaking and group presentations by sharing his lived experiences and expertise in participation.

Through the Young People’s Participation Team, Joseph has had the opportunity to collaborate with practitioners across the country, helping to improve engagement and participation practices.

Marium’s story

Marium is a passionate advocate for young people with SEND, she works to ensure their voices are heard and acted upon. Through her advocacy, Marium has helped create a more inclusive environment and continues to champion the rights of young people with SEND for a better future.

Carly and Charlotte meet their local MP Amanda Martin

Carly and Charlotte met with Amanda Martin, MP for Portsmouth North and a member of the Education Select Committee, to talk about the challenges facing young people with SEND.

During the meeting, they discussed companion bus passes, benefits and employment, and shared ideas on how to create a more inclusive community for everyone.

They also introduced Amanda to the MP SEND Toolkit and encouraged her to use the All About Me resource when meeting young people. Amanda even took the time to fill one out during the meeting!

Carly said, “Talking to my local MP made me feel valued and listened to.”

Tobias meets MPs to advocate for SEND reform

Tobias met a number of MPs, sharing his personal experiences and insights into navigating the SEND system. He highlighted the importance of early diagnosis, continuous support throughout different stages of growing up, and effective transitions that prepare young people for adult life.

Tobias spoke not just for himself, but for many others who have faced challenges navigating the SEND system. Here’s a glimpse of what Tobias discussed:

“I had the chance to meet with MPs, talk about the priorities for disabled young people, and share our stories. I wanted them to understand how crucial it is to get the right support at the right time, especially when it comes to early diagnosis and support during transitions.”

Collection of images of people who attended the MP SEND toolkit launch

About the MP SEND Toolkit

The MP SEND Toolkit itself, created by the Disabled Children’s Partnership (DCP), is an invaluable resource. It helps MPs navigate the complexities of the SEND system, which spans education, health, and social care. The toolkit simplifies the jargon and processes, providing practical advice for MPs when they are handling casework related to SEND.

The lived experiences of disabled children and young people must be at the heart of future decisions around all SEND policy and reform. By making sure the voices of young people are heard and respected, we can build a SEND system that works for everyone.

We look forward to seeing the positive changes that this toolkit will help bring, and the continued collaboration with MPs to ensure that SEND support is accessible, timely, and effective.

The work does not end here – this is just the beginning, and we are excited to keep advocating for the voices of young people with SEND every step of the way.

Useful links

DCP SEND toolkit for MPs

Breaks down complex jargon and processes, offering guidance to MPs when addressing casework related to SEND.

All About Me resource

Our ‘All About Me’ resource, is a tool that helps others get to know you better.

Resources for young people

Guides and resources for young people with SEND to help them amplify their voices.